It’s hard to believe a year has passed since our MLD journey began! A year ago tonight we were sitting in the hospital ER waiting for a bed on the Psychiatric floor with the thought that Greg had Schizophrenia.
We have been blessed by the number of people, friends, family and even strangers that have reached out to support us in prayer and love and acts of kindness!
In February of 2014, we informed a lot of you as to what Greg had been going through and we said we were going to try to start a blog. That never came to fruition and instead our good friend Scott has helped us to develop this website.
So we are going to attempt to update you on the rest of 2014. Going forward, we will try to keep our updates more regular.
We were able to visit the White House and Greg’s Grandma even arranged for us to have a private tour! Greg also started taking pottery classes and made many flower pots and even a bird bath!
In March: We were fortunate to meet a couple that lives in Towson, Maryland whose 25 year old daughter has MLD. They have helped us navigate this new reality and introduced us to the MLD Foundation. We have received so much online support and wisdom from this group and are eternally grateful for their help. In the world of rare diseases it is so hard to find any kind of support group and this one is Amazing! We have made new friends and hope someday to meet many of them in person. No one understands the journey you’re on as much as someone who lives/or has lived it.
We also started going to Crossroads Church and we all have been struck by how much it has filled the hole that our beloved Reverend Cherry had left us with. There are a group of Twenty Something’s (actual name of the group) that have embraced Greg and taken him in as one of their own! He meets with them every Tuesday evening at the Church and then they have fellowship afterwards at a local restaurant. He also has been periodically invited to join them at various events. For the first time in a long time, he feels like he “fits in” and is part of a caring, wonderful, Faithful group! God is good!