Blessed in 2014

greg_inclineIt’s hard to believe a year has passed since our MLD journey began! A year ago tonight we were sitting in the hospital ER waiting for a bed on the Psychiatric floor with the thought that Greg had Schizophrenia.

We have been blessed by the number of people, friends, family and even strangers that have reached out to support us in prayer and love and acts of kindness!

In February of 2014, we informed a lot of you as to what Greg had been going through and we said we were going to try to start a blog. That never came to fruition and instead our good friend Scott has helped us to develop this website.

So we are going to attempt to update you on the rest of 2014. Going forward, we will try to keep our updates more regular.

We were able to visit the White House and Greg’s Grandma even arranged for us to have a private tour! Greg also started taking pottery classes and made many flower pots and even a bird bath!

In March: We were fortunate to meet a couple that lives in Towson, Maryland whose 25 year old daughter has MLD. They have helped us navigate this new reality and introduced us to the MLD Foundation. We have received so much online support and wisdom from this group and are eternally grateful for their help. In the world of rare diseases it is so hard to find any kind of support group and this one is Amazing! We have made new friends and hope someday to meet many of them in person. No one understands the journey you’re on as much as someone who lives/or has lived it.

We also started going to Crossroads Church and we all have been struck by how much it has filled the hole that our beloved Reverend Cherry had left us with. There are a group of Twenty Something’s (actual name of the group) that have embraced Greg and taken him in as one of their own! He meets with them every Tuesday evening at the Church and then they have fellowship afterwards at a local restaurant. He also has been periodically invited to join them at various events. For the first time in a long time, he feels like he “fits in” and is part of a caring, wonderful, Faithful group! God is good!

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Never Never Give Up!

greg_flowers_bgWe love our children with all of our soul and we would do anything for them and give them anything. There are times in life that our future plans and hopes and dreams don’t turn out the way we want.

On Monday, January 13th, 2014 we were called by the crisis counselor at Greg’s school. Evidently, he was experiencing visual and auditory hallucinations that were telling him to hurt himself and others. We were flabbergasted and unsure of what to believe. We picked him up from school and took him home….He had an afternoon appointment with a new counselor (as some of you know this is our 4th counselor in as many years) to help him with some social awkwardness and to help him with the effects of being bullied. When we met with her she advised us to take him to the Emergency Room. So we did. He was admitted to the locked Psychiatric ward for possible new onset Schizophrenia. He was put on an anti-psychotic medication and an anti-depressant.

The next day at visiting hours (only from 2-3pm and 7-8pm) he was really “out of it” from the medications. He said that the hallucinations were still present. We met with the Psychiatrist and the Social worker who advised us to seek help from the Maryland Psychiatric Research Center (MPRC) in Catonsville (as they are the experts on “first break schizophrenic psychoses”). We asked for an MRI and EEG to rule out anything medical. During the evening hours he was more alert but a bit anxious. Wayne was having outpatient surgery the next morning and Greg was worried about him.

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