One of the things MLD does is wreak havoc on the nerves that help you control muscles. Greg has clonus – which makes his legs shake uncontrollably- they get worse when he walks on his toes which is what he does on stairs. He has fallen down the stairs too many times – so we just had a stairlift installed. We’re trying to maintain his independence for as long as possible but safety first!
This wouldn’t have happened without the support of Gregschallenge community! Thank you from the bottom of our hearts!!
Also a special shoutout to Dan, Larry and Mark that came out to install it!! – We were so impressed with their expertise and kindness – Dan-Lar Stairway Elevator Service, LLC
#Leukodystrophyawareness
#Nevernevergiveup
