️Greg gave his speech via zoom to Johns Hopkins Medical students today.
Greg was in the hospital Monday and when they admitted him he was most worried about missing his speech today!
Although he was able to teach 10+ people at the hospital – today he reached over 100 students! He hopes they will remember him and his story so that they can help a future patient with a Leukodystrophy, maybe even MLD. It was a long 5 years trying to get his diagnosis. Now that MLD is on their differential, perhaps one of these future doctors can help another family avoid prolonged misdiagnosis. Or as Greg hopes – find a CURE!
A HUGE thank you to Dr Anna Maria Wilms-Floet for championing Greg’s mission to raise awareness for MLD!
#nevernevergiveup
